United Kingdom
Clinical Oncology
Cancer Scenarios from Scottish Registry, potted summaries of common cancers, future trends, resource implications etc
International Union Against Cancer global cancer organisation with members and activities covering all aspects of cancer control
DoH Circular 2002: Cancer waiting times
NHSIA Cancer pages including National Service Framework
Centre for Cancer Epidemiology Christie Hospital Manchester
DoH National Service Framework page, including NSF for Cancer
NSF for Cancer Assessment #1 Dec 2001 report on joint national review by Commission for Health Improvement and the Audit Commission on progress with NSF for cancer since 1995
UK Cancer Research Infrastructure
- National Cancer Research Network
- National Translational Cancer Research Network
- National Cancer Research Institute
- Cancer Research UK
NHS Lifehouse and London Lifehouse London cancer networks
UK Association of cancer registries
- National Cancer Registry Co-ordinators
- East Anglia Cancer Registry
- Merseyside and Cheshire Cancer Registry
- Northern Ireland Cancer Registry
- Northern and Yorkshire Cancer Registry and Information Service
- North Western Cancer Registry
- Oxford Cancer Intelligence Unit
- Scotland Cancer Registry
- South and West Cancer Intelligence Unit
- Thames Cancer Registry
- Trent Cancer Registry
- West Midlands Cancer Registry information on cancer registry data quality
Psychosocial Oncology
Macmillan Cancer Relief charity that provides nurses trained in terminal care and also in psychosocial aspects of oncology
NHS survey of cancer patients and their impression of the service
The Samaritans charity dealing with people in crisis, especially those contemplating suicide
Ethical & Legal
Access to Health Records Act 1990 (c.23) governed the right of individuals to access and correct medical records during their lifetime and after death; NB now only applies to rights of access to records of dead people
HSG(96)18 NHS guidance on the Protection and Use of Patient Information
The Caldicott Report 1997 report commissioned to review how patient information is used in the NHS
Data Protection Act 1998 governs rights of a living individual to know and control who keeps data about them, whether computerised or not; supercedes DPA 1984 and most of Access to Health Records Act 1990
Issues of consent with cancer registries Oct 2000 BMJ editorial and subsequent responses
Confidentiality: Protecting and Providing Information guidance for doctors from the General Medical Council
Share to Care 2002 report of joint NHS - Consumers' Association public consultation exercise to find out what people want or expect
NHS IPU project to investigate pseudonymisation options invitation to tender, August 2001
NHS patients to have right to prevent research access to their EPR article in Guardian October 8th 2002
OMNI Confidentiality Resource summaries of and links to significant resources
USA
Clinical Oncology
ICD-O version 3 and also from the WHO site
TNM Version 6 UICC and AJCC classification of tumours
Northern New England Cardiovascular Study Group
NCI Center for Bioinformatics (USA)
Centrewatch Clinical Trials Listing Service
Psychosocial Oncology
Association of Oncology Social Work concerned with all psychosocial aspects cancer care
Ethical & Legal
US Department of Health and Human Services HIPAA - Health Insurance Portability and Accountability Act 1996
Protti Report Implementing Information for Health: More challenging than expected ?
NHS IT web sites list of links