Symposium on Governance of Medical Research Databases

Seligman Theatre
Royal College of Physicians, London
Wednesday 27th October 2004

Background to meeting | Programme and presentations | Summary Report of Meeting

Programme and Links to Presentations

10:00 Welcome & Introductions Introduction to the issues:

• Dr. Dipak Kalra, UCL, on CLEF
• Ms. Sheila Casserly on Biobank
• Prof. Joan Higgins, Manchester University, on PIAG: The Patient Information Advisory Group: part of the solution or part of the problem?
• Discussion

11:15 Balancing public good and individual protection:

• Dr. Jane Kaye, Oxford Genetics Knowledge Park, on balancing benefits and risks
• Dr. Kirstine Knox, NTRAC, on National Cancer Research & UK Clinical Research Collaboration
• Toto Gronlund, NHS Information Authority, on NHS survey on public attitudes to medical research: Treatment or a trial? What's my line...

12:30 Lunch

13:30 Navigating/managing approval and regulation:

• Dr. Peter Dukes for MRC Managing approval & regulation
• Prof. Terry Stacey for COREC Discussions (OHP presentation - no electronic copy)

15:00 Tea

15:20 Co-ordinating and integrating the regulation

• Peter Singleton on some of the issues and possible options
• Discussion: Consensus on further actions

16:00 Symposium Close